Having an uncontrollable need to pee. And there is no
warning. It trickles down my leg and into my slippers. I went to the doctor and
the chemist in track suit pyjamas so as not to soil all my clothes. I got antibiotics
(nitrofurantoin) and it is now the next day and the peeing is much less.
I have a ceramic poe from an earlier life and it inspired me
to use a round plastic basin for a similar purpose. I used my left hand to
position the penis such that it did not deliver outside of the basin. The right
hand fine-tuned the aiming.
I remember sitting in the toilet of the servants’ quarters
in Jamaica after a short holiday in Mexico. There were regular sessions of
nippy shits but with an excellent view of the citrus and banana plantations
stretching down the hill to the sea. Then there were the screaming shits of
typhoid in Juba. There was the thought of being able, as a biology teacher, to teach
about many of the tropical diseases from the inside.
I also have inside knowledge of Parkinson’s Disease –
particularly of the non-motor aspects. This allows me to rate some of the research
findings – for example
“Increasing research, however, shows that Parkinson’s is a
multisystem disease that affects other nerve cells besides dopaminergic
neurons, triggering symptoms, such as cognitive impairment, sleep disturbances,
depression, and sensory impairments. These symptoms, however, are barely used
as endpoints in clinical trials for Parkinson’s.”
Right enough – what
is missing?
“Types of non-motor
symptoms
Emotional and mood changes including,
depression, anxiety, and irritability. Antidepressant drugs can be taken to
treat depression.
Cognitive changes or dementia
associated with memory, language, and thinking problems.
Hallucinations and delusions, causing
people to see, hear or experience things that aren’t real (hallucinations), or
believe that things aren’t true (delusions). Nuplazid is an approved drug for
the treatment of hallucinations and delusions associated with Parkinson’s
disease.
Orthostatic hypotension, a sudden drop
in blood pressure that occurs when a person stands up from a sitting or lying
position. It causes dizziness and, in extreme cases, loss of balance and
fainting.
Sleeping problems such as insomnia,
nightmares, emotional dreams, and restless sleep.
Constipation or urinary problems.
Skin problems such as oily skin,
particularly on the forehead and at the sides of the nose, and in some cases in
the scalp. In other cases, the skin becomes very dry.
Pain associated
with muscle and joints rigidity.
Treatment with levodopa (a medication that temporarily restores dopamine in the
brain) and certain types of exercise can help relieve pain symptoms.
Fatigue and loss of energy may result
from other symptoms, such as depression, sleep problems, or muscle stress. Exercise,
good sleeping habits, staying mentally active, or not engaging in too many
activities may help in relieving these symptoms.
Sexual problems. Parkinson’s disease
affects nerve signals from the brain, which may cause sexual problems. Certain
medications, such as antidepressants, also may contribute to these problems.
Muscle cramps and dystonia. Muscle
cramps are associated with muscle rigidity, especially in the legs and toes.
Massages, stretching, and applying heat may help with cramps. Dystonia results
from the variation of dopamine levels that trigger muscle contraction.
Other examples of non-motor symptoms may include:
Vision problems.
Excessive
sweating, especially in the hands and feet with no or little exercise.
Loss of smell.
Weight loss or
weight gain.
Impulsive behaviours
due to the side effects of medication.”
I have at times suffered many of those items. But I have three
groups of nuisance symptoms which do not get a fair hearing on the above list.
Slivering.
Especially while dosing in a more or less upright position. When working at the
computer I position myself so as to dribble between my legs on to the floor. While
dosing there is a flow through my beard and into my shirt which ends up severely
soaking.
Voice. My voice
is soft and I stutter. This is quite a nuisance when just speaking. It is a
severe problem when trying to sing.
Hands. Weakness. Illegible
hand writing; clumsy computer keyboard and use of a mouse; clumsy and slow playing
of guitar and musical keyboard. Handling money. Opening tins and bottles.